| 2020-106-Other |
Common rule only |
NEW |
Erin Peckham-Gregory, |
None |
Molecular Genomics of Langerhans Cell Histiocytosis and Lymphoma Susceptibility |
CDPH: Biobank, VSAC |
5/5/2020 |
5/7/2020 |
| 2019-130-University of Southern California |
Common rule/Human subjects |
CR |
Eunjung Lee, PhD |
University of Southern California |
Lifestyle, Health Care, and Stomach Cancer |
CDPH: California Cancer Registry |
4/29/2020 |
4/29/2020 |
| 2018-104-UC San Francisco |
Common rule only |
AMD |
Emily Bergsland, MD |
University of California, San Francisco |
University of California San Francisco Neuroendocrine Tumor Outcomes Database (CC# 10456) |
CDPH: CCR |
5/1/2020 |
5/5/2020 |
| 2018-104-UC San Francisco |
Common rule only |
CR |
Emily Bergsland, MD |
University of California, San Francisco |
University of California San Francisco Neuroendocrine Tumor Outcomes Database (CC# 10456) |
CDPH: CCR |
5/11/2020 |
5/11/2020 |
| 2019-171-KP |
Death data only |
AMD |
Elizabeth McGlynn, PhD |
Kaiser Permanente |
Estimating Healthy Life Years Among Kaiser Permanente Members and Kaiser Permanente Communities |
CDPH: DSMF
CDPH: CCMDF
CDPH: CCDF Static
CDPH: Multiple Cause of Death |
2/24/2020 |
2/25/2020 |
| 2019-171-KP |
Death data only |
AMD |
Elizabeth McGlynn, PhD |
Kaiser Permanente |
Estimating Healthy Life Years Among Kaiser Permanente Members and Kaiser Permanente Communities |
CDPH: DSMF
CDPH: CCMDF
CDPH: CCDF Static
CDPH: Multiple Cause of Death |
4/6/2020 |
4/16/2020 |
| 2018-102-UC San Francisco |
SB-13 (Information Practices Act) |
CR |
Elliot Stieglitz, MD |
University of California, San Francisco |
Determining the Prenatal Origin of Juvenile Myelomonocytic Leukemia |
CDPH: GDSP |
4/20/2020 |
4/24/2020 |
| 2018-007-Harvard University |
Common rule only |
FIN |
Edward Goldstein, PhD |
Harvard University |
Investigating the Role of Age Groups During Pertussis Outbreaks in California |
CDPH: Pertussis Surveillance Database |
1/21/2020 |
4/3/2020 |
| 2018-080-University of Southern California |
Common rule only |
AMD |
Emily Putnam-Hornstein, PhD |
University of Southern California |
California Health and Human Services Record Reconciliation |
DDS
DHCS
CDPH
DSS |
1/28/2020 |
1/29/2020 |
| 2018-080-University of Southern California |
Common rule only |
CR |
Emily Putnam-Hornstein, PhD |
University of Southern California |
California Health and Human Services Record Reconciliation |
DDS
DHCS
CDPH
DSS |
2/3/2020 |
2/7/2020 |
| 2019-173-UC San Francisco |
Common rule/Human subjects |
AMD |
Elizabeth Mertz, PhD |
University of California, San Francisco |
Assessing Dental Care Access for Adult Medi-Cal Members in California |
DHCS: Medi-Cal dental clims data and Dental provider enrollment data |
6/23/2020 |
6/29/2020 |
| 16-07-2635-CONVERSION |
Common rule/Human subjects |
CR |
Emma Sanchez-Vaznaugh, ScD, MPH |
San Francisco State University |
Nutrition Policies and Environment Effects on Child Health and Academic Outcomes |
DOE |
4/30/2020 |
5/11/2020 |
| 2017-084-DSH |
Common rule only |
CR |
Erin Dengate, |
California DSH |
Examining Choking Risks Within State Hospital Patients |
DSH: Data Management Office |
1/7/2020 |
2/7/2020 |
| 2020-116-UC San Diego |
Common rule only |
NEW |
Edward Castillo, PhD, MPH |
None |
Clinical and Demographics Factors of Patients Receiving Emergency Department and Related Care in California |
OSHPD: Patient Discharge Data (PDD)
OSHPD: Emergency Department Data (EDD) |
5/12/2020 |
None |
| 2020-096-Northwestern University |
Common rule only |
NEW |
Eilidh Geddes, MA Economics |
Northeastern University |
Rent Control and Domestic Violence |
OSHPD: PDD |
4/30/2020 |
5/5/2020 |
| 13-10-1366-CONVERSION |
Common rule only |
CR |
Emily Putnam-Hornstein, PhD |
University of Southern California |
The Children's Data Network/California Children's Services Archive |
CDSS: Child Welfare Services / Case Management data (CWS/CMS), Structured Decision Making Data (SDM records via the Children's Research Center and falling under the authority of CDSS)
CDPH: Vital Statistics Birth Master & Cohort Files; Vital Statistics Death Master Files
CDCR: (1) Offender-Based Information System (OBIS), (2) Offender-Based Information Tracking System (OBITS)
DDS: Purchase of Service System (POS), Vendor System (Vendor), Client Master File (CMF), Client Development Evaluation Report System (CDER), Early Start Report System (ESR)
DHCS: Medicaid Eligibility and Billing / Claims Records (MEDS)
DMV: Driver License / Identification Cards (DL/ID)
DOJ: Criminal Offender Record Information system (CORI), specifically ACHS and MACR files
CDE: California Longitudinal Pupil Achievement Data System (CALPADS)
First 5 Los Angeles: Strengthening Families Database (WB)
San Francisco Human Services Agency: Homeless Management Information System records (HMIS), Medicaid Enrollment records (Medi-CAL), Temporary Assistance for Needy Families records (TANF), Supplemental Nutrition Assistance Program records (SNAP/CalFresh), Subsidized Child Care, Preschool for All (PFA), Family Resource Centers (FRC), Department of Children, Youth and Their Families (DCYF) CMS Data
Los Angeles County Department of Mental Health: LACDMH Services Records (LACDMH)
Child Care Resource Center (CCRC): Child Care Records (subset of LA County)
Los Angeles County Department of Probation: Probation Case Management System (PCMS)
Los Angeles Homeless Services Authority: Homeless Management Information System (HMIS) |
4/23/2020 |
6/8/2020 |
| 12-04-0097-CONVERSION |
Common rule only |
CR |
Esther John, PhD |
Stanford University |
Molecular Pathoepidemiology of Contralateral Breast Cancer |
CDPH: Case listings for Region 3 , Greater Sacramento Area, and Region 9, Los Angeles county, are provided by The California Cancer Registry (CCR). In Northern California case listings for Regions 1 & 8 are provided by The Greater Bay Area Cancer Registry (GBACR). |
4/28/2020 |
4/28/2020 |
| 14-03-1550-CONVERSION |
SB-13 (Information Practices Act) |
CR |
Elsa Chen, PhD |
Santa Clara University |
The De-Escalation of Mass Incarceration: Implementation and Effects of Three Strikes Reform in California |
CDCR |
3/9/2020 |
4/17/2020 |
| 13-02-1105-CONVERSION |
SB-13 (Information Practices Act) |
CR |
Elliott Sherr, M.D., P.h.D. |
University of California, San Francisco |
Disorders of Cerebral Development: A Phenotypic and Genetic Analysis |
CDPH: Genetic Disease Screening Program (GDSP) and California Birth Defects Monitoring Program (CBDMP) |
5/7/2020 |
5/7/2020 |
| 16-02-2445-CONVERSION |
SB-13 (Information Practices Act) |
CR |
Erin Marcotte, PhD |
University of Minnesota |
Germline Genomics of Hepatoblastoma |
CDPH: California Biobank Program |
5/4/2020 |
5/5/2020 |
| 17-06-3019-CONVERSION |
SB-13 (Information Practices Act) |
CR |
Elyas Bakhtiari, PhD |
William and Mary University |
Anti-Muslim Discrimination and Birth Outcome Disparities, 19972017 formerly
Anti-Muslim Discrimination and Birth Outcome Disparities, 19972015 |
CDPH: Health Information Research Section: California Comprehensive Birth data files |
6/24/2020 |
None |
| 16-06-2579-CONVERSION |
SB-13 (Information Practices Act) |
CR |
Erin Accurso, PhD |
University of California, San Francisco |
Health Disparities in the Medical and Mental Health Care for Youth with Eating Disorders |
DHCS: archival database |
2/19/2020 |
2/24/2020 |
| 15-06-2069-CONVERSION |
SB-13 (Information Practices Act) |
AMD |
E. David Zepeda, PhD |
Boston University |
Effects of Uncertainty on Patient Care |
OSHPD: Nonpublic Patient Level Data (IPA) Patient Discharge Data (PDD) for 2010 - 2014 |
2/14/2020 |
2/14/2020 |
| 13-03-1159-CONVERSION |
SB-13 (Information Practices Act) |
CR |
Elizabeth Cauffman, PhD |
University of California, Irvine |
Making the Transition: Socioemotional Adjustment of Youthful Offenders into Adulthood |
CDCR: date of adult facility entry/admission, transfers to other adult facilities, date(s) of transfers, date of release from incarceration, date and nature of any institutional infractions, dispositions (punishments) for institutional infractions, and available risk assessment scores/COMPAS assessments. |
2/24/2020 |
2/25/2020 |
| 16-03-2473-CONVERSION |
Common rule only |
CR |
Elizabeth Harris, PhD |
National Council on Crime and Delinquency |
Title IV-E Waiver Demonstration California Well-Being Project Evaluation |
DSS: CWS/CMS data |
3/2/2020 |
3/2/2020 |
| 13-03-1143-CONVERSION |
Death data only, SB-13 (Information Practices Act) |
CR |
Esther John, PhD |
Stanford University |
California Cancer Registry Linkage with the Northern California Breast Cancer Family Registry Cohort |
CDPH: California Cancer Registry (CCR) database |
4/28/2020 |
4/29/2020 |
| 2020-003-UC Berkeley |
SB-13 (Information Practices Act) |
NEW |
Evan White, JD MPP |
University of California, Berkeley |
Assessing the Child Welfare System Service Delivery and Outcomes |
None |
1/3/2020 |
2/10/2020 |
| 2020-066-National Council on Crime and Delinquency |
Common rule only |
NEW |
Elizabeth Harris, PhD |
National Council on Crime and Delinquency |
Parents Anonymous® Parents & Caregivers and Children & Youth Groups Evaluation |
None |
4/6/2020 |
4/20/2020 |
| 2017-046-University of Chicago |
SB-13 (Information Practices Act) |
CR |
Emir Kamenica, PhD |
None |
Coming Apart? Lives of the Rich and Poor Over Time |
None |
4/20/2020 |
6/8/2020 |
| 2019-140-San Diego County |
Common rule/Human subjects |
CR |
Elizabeth Harris, PhD |
National Council on Crime and Delinquency |
Hotline Multidisciplinary Team Evaluation |
None |
4/22/2020 |
4/27/2020 |
| 2020-086-UC San Francisco |
None |
DTM |
Edward Machtinger, MD |
University of California, San Francisco |
California Statewide REPerse Childhood Experiences (ACEs) Learning Collaborative: Developing Best Practices Training Healthcare Providers in ACEs Screening, Response and Data Collection |
None |
4/24/2020 |
4/27/2020 |
| 2019-140-San Diego County |
Common rule/Human subjects |
AMD |
Elizabeth Harris, PhD |
National Council on Crime and Delinquency |
Hotline Multidisciplinary Team Evaluation |
None |
5/6/2020 |
5/14/2020 |
| 2020-111-DSH |
None |
DTM |
Elijah Morrow, PsyD |
None |
Organizational Trauma Informed Care during the COVID-19 Pandemic |
None |
5/8/2020 |
5/20/2020 |