Table: cphs_approved_research_projects_20200 , pi_name like C*

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protocol_id project_type application_type pi_name pi_organization project_title data_source defined completed
2020-061-Education Testing Service SB-13 (Information Practices Act) NEW Cara Laitusis, PhD None Data Visualization of Accessibility Tools Usage CDE: Smarter Balanced assessments 3/12/2020 None
2020-067-Education Testing Service SB-13 (Information Practices Act) NEW Cara Laitusis, PhD None Automated Detection of Crisis Papers CDE: The ETS Online Network for Evaluation. 4/6/2020 None
2019-025-UC San Diego Common rule only CR Christina Chambers, PhD, MPH University of California, San Diego San Diego Study of Outcomes in Mother and Infants (SOMI) CDPH: Birth certificate files, Fetal death certificate files, Birth cohort files, California Birth Defect Monitoring Program data and Death certificate files OSHPD: Birth cohort files, PDD, EDD, ASD 4/21/2020 5/7/2020
2019-025-UC San Diego Common rule only AMD Christina Chambers, PhD, MPH University of California, San Diego San Diego Study of Outcomes in Mother and Infants (SOMI) CDPH: Birth certificate files, Fetal death certificate files, California Birth Defect Monitoring Program data, Death certificate files and Birth cohort files OSHPD: Birth cohort files, PDD, EDD and ASD 2/12/2020 4/28/2020
2020-132-UC Davis Common rule/Human subjects NEW Chandni Parikh, Ph.D. None Online Screening for Autism in the Community CDPH: Birth certificates 6/25/2020 None
2019-068-Vanderbilt University Common rule only CR Cindy Kam, PhD None Birth and Turnout CDPH: California Birth Data 2/19/2020 2/19/2020
2020-095-UC Berkeley Common rule only NEW Catherine Metayer, MD, PhD University of California, Berkeley Per- and Polyfluoroalkyl Substances (PFAS) and Risk of Testicular Germ Cell Tumors (TGCT) in Adolescent and Young Adult Males CDPH: California Cancer Registry (CCR), Genetic Disease Screening Program (GDSP) and Center for Health Statistics and Informatics (CHSI) 4/30/2020 6/16/2020
2018-149-UC Berkeley SB-13 (Information Practices Act) CR Catherine Metayer, MD, PhD University of California, Berkeley Epidemiology of Testicular Cancer in Children and Adolescents CDPH: CCR, CHSI and GDSP 6/19/2020 None
2020-055-Public Health Institute Common rule/Human subjects NEW Caitlin Murphy, PhD None Early Life Exposures and Risk of Young-Onset Colorectal Cancer CDPH: the California Cancer Registry 3/9/2020 4/22/2020
2018-165-DSS SB-13 (Information Practices Act) AMD Caroline Danielson, PhD, MPhil Public Policy Institute of California (PPIC) Mobility Through CalFresh and CalWORKs CDSS: SNAP LDB CDSS: SNAP RADEP CDSS: WDTIP CDSS: TANF LDB CDSS: EBT/SARS CDSS: QCEW CDSS: Base Wage Match and UI File 6/23/2020 6/23/2020
2018-165-DSS SB-13 (Information Practices Act) AMD Caroline Danielson, PhD, MPhil Public Policy Institute of California (PPIC) Mobility Through CalFresh and CalWORKs CDSS: SNAP LDB CDSS: SNAP RADEP CDSS: WDTIP CDSS: TANF LDB CDSS: EBT/SARS CDSS: QCEW CDSS: Base Wage Match and UI File 6/23/2020 6/23/2020
2018-165-DSS SB-13 (Information Practices Act) CR Caroline Danielson, PhD, MPhil Public Policy Institute of California (PPIC) Mobility Through CalFresh and CalWORKs CDSS: SNAP LDB CDSS: SNAP RADEP CDSS: WDTIP CDSS: TANF LDB CDSS: EBT/SARS CDSS: QCEW CDSS: Base Wage Match and UI File 6/29/2020 None
2020-119-UC San Francisco Common rule only NEW Cristina Lanata, MD None The Methylome Across the Lifespan as a Biomarker for Systemic Lupus Erythematosus Outcomes and Disease Activity CSPH: California Biobank Program 5/21/2020 None
2018-175-CSUS Common rule/Human subjects AMD Celeste Doerr, PhD Public Health Institute CalFresh Health Survey DHCS: Medi-Cal Eligibility Data System (MEDS) 2/3/2020 2/3/2020
2019-117-UC Berkeley SB-13 (Information Practices Act), Common rule only AMD Catherine Wright, University of California, Berkeley The Modulating Effect of Health Insurance on Air Pollution Morbidity OSHPD: Patient Discharge Data (PDD), Emergency Department Data (ED), Linked EDD and VS-DSMF, Linked EDD and VS-DSMF and Linked EDD and VS-DSMF (Version A) 4/8/2020 4/13/2020
2019-117-UC Berkeley SB-13 (Information Practices Act), Common rule only CR Catherine Wright, University of California, Berkeley The Modulating Effect of Health Insurance on Air Pollution Morbidity OSHPD: Patient Discharge Data (PDD), Emergency Department Data (ED), Linked EDD and VS-DSMF, Linked EDD and VS-DSMF and Linked EDD and VS-DSMF (Version A) 4/20/2020 6/8/2020
16-06-2606-CONVERSION Common rule/Human subjects AMD Carol Sakala, PhD, MSPH National Partnership for Women and Families Listening to Mothers in California Survey CDPH: Birth Statistical Master Files, September-December 2016; 2. CDPH: Genetic Disease Screening Program Newborn Screening Database, 3. DHCS: MIS/DSS Warehouse 6/22/2020 6/26/2020
16-06-2606-CONVERSION Common rule/Human subjects CR Carol Sakala, PhD, MSPH National Partnership for Women and Families Listening to Mothers in California Survey CDPH: Birth Statistical Master Files, September-December 2016; 2. CDPH: Genetic Disease Screening Program Newborn Screening Database, 3. DHCS: MIS/DSS Warehouse 6/26/2020 None
12-07-0529-CONVERSION SB-13 (Information Practices Act) CR Catherine Metayer, MD, PhD University of California, Berkeley Childhood Cancer Record Linkage Project CDPH: Archived Newborn Blood Spots (ANBS) specimens from the CDPH (CDPH), - Genetic Disease Screening Program (GDSP), Newborn Archived Blood Specimens, California Cancer Registry (CCR) 6/24/2020 None
15-02-1899-CONVERSION Common rule only AMD Cristina Gutierrez, PhD Perkin Elmer Long-Term Frozen Stability of Markers of Inborn Errors of Metabolism (IEM) and Lysosomal Storage Disorders (LSD) in Neonatal Dried Blood Spots CDPH: California Biobank Program 2/21/2020 2/24/2020
15-02-1899-CONVERSION Common rule only CR Cristina Gutierrez, PhD Perkin Elmer Long-Term Frozen Stability of Markers of Inborn Errors of Metabolism (IEM) and Lysosomal Storage Disorders (LSD) in Neonatal Dried Blood Spots CDPH: California Biobank Program 2/28/2020 2/28/2020
16-04-2527-CONVERSION SB-13 (Information Practices Act) CR Caroline Thompson, PhD San Diego State University Visualizing Socioeconomic and Racial Disparities in the Burden of Screening Detectable Cancers Using Geographic Information System and Web Mapping Tools CDPH: California Cancer Registry data 5/4/2020 5/5/2020
14-08-1683-CONVERSION Common rule/Human subjects AMD Christopher Haiman, ScD University of Southern California Genetic Studies of Prostate Cancer in African American Men CDPH: Cancer Surveillance Program 2/12/2020 4/2/2020
13-03-1138-CONVERSION SB-13 (Information Practices Act) CR Catherine Metayer, MD, PhD University of California, Berkeley Environmental and Molecular Epidemiology of Childhood Leukemia (Lay Title: California Childhood Leukemia Study) CDPH: Archived newborn blood spots [Genetic Disease Branch], California live birth file (1986-2015) [CDPH - Office of Vital Statistics], California death file(1986-2015) [CDPH - Office of Vital Statistics] 2/19/2020 2/24/2020
14-03-1544-CONVERSION SB-13 (Information Practices Act) CR Chelsea Collins, MD Loma Linda University Patterns of Subspecialty Cancer Care and their Association with Survival among Adolescents and Young Adults (AYAs) CDPH: California Cancer Registry data 4/24/2020 4/27/2020
15-09-2232-CONVERSION Common rule only CR Catherine Metayer, MD, PhD University of California, Berkeley Center for Integrative Research on Childhood Leukemia and the Environment CDPH: Genetic Disease Screening Program, Archived Newborn Blood Specimens (ANBS) and Maternal Pregnancy Blood Sera; California Cancer Registry, CA Birth Registry 2/25/2020 2/26/2020
15-09-2232-CONVERSION Common rule only AMD Catherine Metayer, MD, PhD University of California, Berkeley Center for Integrative Research on Childhood Leukemia and the Environment CDPH: Genetic Disease Screening Program, Archived Newborn Blood Specimens (ANBS) and Maternal Pregnancy Blood Sera; California Cancer Registry, CA Birth Registry 4/7/2020 4/14/2020
17-03-2920-CONVERSION Common rule only CR Chloe East, University of Colorado, Denver Multigenerational Effects of Government Policies CDPH: Birth Data File 6/18/2020 None
16-06-2587-CONVERSION SB-13 (Information Practices Act) CR Catherine Metayer, MD, PhD University of California, Berkeley The California Linkage Study of Early Onset Cancers (CALSEC) CDPH: California Cancer Registry 6/19/2020 None
12-08-0644-CONVERSION Common rule/Human subjects AMD Christine Borger, PhD None Women, Infants, and Children Infant and Toddler Feeding Practices Study–2 (WIC ITFPS-2): Feeding My Baby – A National Women, Infants, and Children Study CDPH: Integrated Statewide Information System (ISIS), where all WIC data are stored in California 1/17/2020 1/29/2020
12-08-0644-CONVERSION Common rule/Human subjects AMD Christine Borger, PhD None Women, Infants, and Children Infant and Toddler Feeding Practices Study–2 (WIC ITFPS-2): Feeding My Baby – A National Women, Infants, and Children Study CDPH: Integrated Statewide Information System (ISIS), where all WIC data are stored in California 4/23/2020 4/23/2020
12-08-0644-CONVERSION Common rule/Human subjects CR Christine Borger, PhD None Women, Infants, and Children Infant and Toddler Feeding Practices Study–2 (WIC ITFPS-2): Feeding My Baby – A National Women, Infants, and Children Study CDPH: Integrated Statewide Information System (ISIS), where all WIC data are stored in California 4/29/2020 5/30/2020
16-05-2564-CONVERSION Death data only FIN Cynthia Fontanella, PhD Ohio State University Clinical Profiles and Treatment Utilization Patterns Associated with Suicide Among Youth in Medicaid in the United States CDPH: Death Data Files 6/18/2020 None
14-10-1764-CONVERSION SB-13 (Information Practices Act) AMD Chu Chen, PhD Fred Hutchinson Cancer Research Center Infrastructure Support and Pilot Tissue Collection for the Carotene and Retinol Efficacy Trial (CARET) Biorepository formerly CARET Biorepository and Data Enhancement Project CDPH: California Cancer Registry (CCR). Cancer diagnosis, stage, and treatment 4/8/2020 4/8/2020
14-10-1764-CONVERSION SB-13 (Information Practices Act) CR Chu Chen, PhD Fred Hutchinson Cancer Research Center Infrastructure Support and Pilot Tissue Collection for the Carotene and Retinol Efficacy Trial (CARET) Biorepository formerly CARET Biorepository and Data Enhancement Project CDPH: California Cancer Registry (CCR). Cancer diagnosis, stage, and treatment 4/20/2020 4/28/2020
14-10-1764-CONVERSION SB-13 (Information Practices Act) AMD Chu Chen, PhD Fred Hutchinson Cancer Research Center Infrastructure Support and Pilot Tissue Collection for the Carotene and Retinol Efficacy Trial (CARET) Biorepository formerly CARET Biorepository and Data Enhancement Project CDPH: California Cancer Registry (CCR). Cancer diagnosis, stage, and treatment 4/28/2020 4/29/2020
12-04-0155-CONVERSION Common rule/Human subjects CR Catherine Cubbin, PhD University of Texas Environmental Effects on Disparities in Smoking and Obesity Among Women CDPH: MIHA data linked with birth certificates 5/13/2020 5/13/2020
13-12-1428-CONVERSION Common rule only CR Catrina Taylor, PhD CDPH Chronic Disease in California, 2007-2016 OSHPD: data include Patient Discharge Data and the Emergency Department and Ambulatory Surgery Center Data CDPH: Death Statistical Master File data 1/23/2020 2/7/2020
17-02-2887-CONVERSION Common rule only AMD Christy Adams, MPH, PhD University of California, Davis Associations of Acute Hospitalization with Post-Discharge Injury Falls Among Community Dwelling Older Adults in California OSHPD: Non-public Patient Discharge Data (PDD), Non-public Emergency Department Data (ED) 6/17/2020 6/19/2020
17-02-2887-CONVERSION Common rule only CR Christy Adams, MPH, PhD University of California, Davis Associations of Acute Hospitalization with Post-Discharge Injury Falls Among Community Dwelling Older Adults in California OSHPD: Non-public Patient Discharge Data (PDD), Non-public Emergency Department Data (ED) 6/19/2020 None
12-04-0120-CONVERSION SB-13 (Information Practices Act) CR Caroline Tanner, MD, PhD University of California, San Francisco California Parkinson’s Disease Registry Pilot Project Research: Dataset Linkage to Assess Registry Validity and Feasibility of Exploratory Research into Environmental Toxicant Exposures and Patterns of Care DPR: California Pesticide Use Report and California Department of Water land use maps California Environmental Health Tracking Program (CEHTP) Agricultural Pesticide Linkage Service CHP: CEHTP Traffic Linkage Service EPA: National Air Toxics Assessment database CDPH: California Drinking Water Contaminants EPA: Toxic Release Inventory CHP: CEHTP Geocoding Service United States Census data on population size and characteristics (publicly available data only) OSHPD: statewide and county data on health care services and distribution (publicly available data only) 5/4/2020 6/5/2020
14-01-1465-CONVERSION Common rule only CR Caren Sax, EdD San Diego State University California Promoting the Readiness of Minors in Supplemental Security Income (CaPROMISE) DOR: AWARE case management system only for CaPROMISE enrollees who have applied for services from the California Department of Rehabilitation 2/21/2020 2/24/2020
12-04-0140-CONVERSION Common rule only CR Caroline Tanner, MD, PhD University of California, San Francisco California Parkinson’s Disease Registry Pilot Project Research: Use of Medicare Data to Assess Registry Data Collection Efficiency CMS: Research Identifiable Files 5/4/2020 6/5/2020
13-01-1048-CONVERSION Common rule only CR Catherine Sandhofer, PhD University of California, Los Angeles Research in Language and Cognitive Development CDPH 3/17/2020 3/17/2020
13-01-1048-CONVERSION Common rule only AMD Catherine Sandhofer, PhD University of California, Los Angeles Research in Language and Cognitive Development CDPH 4/28/2020 4/29/2020
15-05-2036-CONVERSION Common rule only AMD Craig Pollack, MD, MHS Johns Hopkins Medicine Comparative Effectiveness of Moving to a Low-Versus Remaining in a High-Poverty Neighborhood for Health Care Utilization and Costs of Care OSHPD: Patient Discharge Data (from 1995-1997), Ambulatory Surgery Center Data and Emergency Department Data 6/3/2020 6/4/2020
15-05-2036-CONVERSION Common rule only CR Craig Pollack, MD, MHS Johns Hopkins Medicine Comparative Effectiveness of Moving to a Low-Versus Remaining in a High-Poverty Neighborhood for Health Care Utilization and Costs of Care OSHPD: Patient Discharge Data (from 1995-1997), Ambulatory Surgery Center Data and Emergency Department Data 6/19/2020 None
12-09-0720-CONVERSION Common rule only AMD Craig Pollack, MD, MHS Johns Hopkins Medicine Comparative Effectiveness of Moving to a Low- Versus Remaining in a High-Poverty Neighborhood for Health Care Utilization and Costs of Care OSHPD: Patient Discharge Data (from 1995-1997), Ambulatory Surgery Center Data and Emergency Department Data 6/3/2020 6/4/2020
12-09-0720-CONVERSION Common rule only CR Craig Pollack, MD, MHS Johns Hopkins Medicine Comparative Effectiveness of Moving to a Low- Versus Remaining in a High-Poverty Neighborhood for Health Care Utilization and Costs of Care OSHPD: Patient Discharge Data (from 1995-1997), Ambulatory Surgery Center Data and Emergency Department Data 6/19/2020 None
13-02-1097-CONVERSION SB-13 (Information Practices Act) CR Chun Chao, PhD Kaiser Permanente An Examination of Chronic Health Problems of Survivors of Adolescent and Young Adult Cancer CDPH: California Cancer Registry (CCR) 2/20/2020 2/21/2020
17-07-3049-CONVERSION Common rule/Human subjects CR Camelia Hostinar, PhD University of California, Davis Parent Support and Children's Responses to a Public Speaking Challenge Lisa Oakes Database 6/26/2020 None
2020-004-Public Health Institute None DTM Celeste Doerr, PhD Public Health Institute Latino Coalition for a Healthy California - Community Action Plan None 1/3/2020 2/7/2020
2020-029-Other None DTM Crystal Milne, MPH None Wisdom Wanted: Experiences of Aging and Ageism Among Older Adults in Napa County None 2/21/2020 2/25/2020
2017-013-Other Common rule/Human subjects AMD Cheryl Grills, PhD Loyola Marymount University The California Reducing Disparities Project – Phase II, Statewide Evaluation None 2/21/2020 2/26/2020
2017-013-Other Common rule/Human subjects CR Cheryl Grills, PhD Loyola Marymount University The California Reducing Disparities Project – Phase II, Statewide Evaluation None 2/28/2020 3/4/2020
2017-013-Other Common rule/Human subjects REP Cheryl Grills, PhD Loyola Marymount University The California Reducing Disparities Project – Phase II, Statewide Evaluation None 4/23/2020 6/5/2020
2017-013-Other Common rule/Human subjects AMD Cheryl Grills, PhD Loyola Marymount University The California Reducing Disparities Project – Phase II, Statewide Evaluation None 5/4/2020 5/5/2020
2018-136-Johns Hopkins University Common rule only CR Charvonne Holliday, PhD, MPH Johns Hopkins University Racial/Ethnic Differences in Unintended Pregnancy Risk: A Place-Based Comparison None 5/4/2020 None
2017-013-Other Common rule/Human subjects REP Cheryl Grills, PhD Loyola Marymount University The California Reducing Disparities Project – Phase II, Statewide Evaluation None 5/5/2020 6/5/2020
2020-118-UC San Francisco None DTM Carla Perissinotto, MD MHS None Assessing the Effect of COVID-19 on Loneliness and Social Isolation in Older Adults None 5/20/2020 6/5/2020
2020-121-UC San Francisco Common rule/Human subjects NEW Carla Perissinotto, MD MHS None Assessing the Effect of COVID-19 on Loneliness and Social Isolation in Older Adults None 5/28/2020 None
2017-013-Other Common rule/Human subjects AMD Cheryl Grills, PhD Loyola Marymount University The California Reducing Disparities Project – Phase II, Statewide Evaluation None 6/16/2020 6/18/2020
2019-148-Massachusetts General Hospital SB-13 (Information Practices Act) CR Carlos Camargo, MD, DrPH Massachusetts General Hospital Trends in Readmission Rates for COPD None 6/22/2020 None
2020-133-Other None DTM Christina Collosi, M.Ed. None Quality Counts California Data None 6/26/2020 None