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| Authors | Niello | ||||||||||||||||
| Subject | None | ||||||||||||||||
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| Title | Relative to Amyotrophic Lateral Sclerosis Awareness Month. | ||||||||||||||||
| Last Action Dt | 2026-04-06 | ||||||||||||||||
| State | Introduced | ||||||||||||||||
| Status | In Committee Process | ||||||||||||||||
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| Analyses | TBD | ||||||||||||||||
| Latest Text | Bill Full Text | ||||||||||||||||
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1.0" ?> WHEREAS, Amyotrophic lateral sclerosis (ALS), also commonly known as Lou Gehrig’s disease, is a progressive fatal neurodegenerative disease in which a person’s brain loses connection with their muscles, slowly reducing a person’s ability to walk, talk, eat, and eventually breathe; and WHEREAS, Thousands of new ALS cases are reported every year, and estimates show that every 90 minutes someone is diagnosed with ALS and someone passes away from ALS; and WHEREAS, On average, patients diagnosed with ALS survive only two to five years from the time of diagnosis; and WHEREAS, The exact causes of ALS are unknown and there is no known cure for ALS; and WHEREAS, People who have served in the military are more likely to develop ALS and die from the disease than those with no history of military service; and WHEREAS, Securing access to new therapies, durable medical equipment, and communication technologies is of vital importance to people living with ALS; and WHEREAS, Clinical trials play a pivotal role in evaluating new treatments, enhancing quality of life, and fostering assistive technologies for those living with ALS; and WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month provides an opportunity to increase public awareness of the dire circumstances of people living with ALS, acknowledge the terrible impact this disease has on those individuals and their families, and support research to eradicate this disease; now, therefore, be it |