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<ns0:ActionText>INTRODUCED</ns0:ActionText>
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<ns0:ActionDate>2025-05-30</ns0:ActionDate>
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<ns0:SessionYear>2025</ns0:SessionYear>
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<ns0:AuthorText authorType="LEAD_AUTHOR">Introduced by Senator Becker</ns0:AuthorText>
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<ns0:House>SENATE</ns0:House>
<ns0:Name>Becker</ns0:Name>
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<ns0:Title> Relative to Myositis Awareness Month. </ns0:Title>
<ns0:RelatingClause>Myositis Awareness Month</ns0:RelatingClause>
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<html:p>WHEREAS, Nearly one in 10 Americans have rare diseases, including residents of California affected by myositis; and</html:p>
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<ns0:Whereas id="id_0C02B247-F106-41C7-BBC6-4077592F683A">
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<html:p>WHEREAS, Idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle wasting diseases; and</html:p>
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<ns0:Whereas id="id_683CB2F8-AF1A-4A3A-B329-E70F8273D782">
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<html:p>WHEREAS, Myositis often features debilitating muscle inflammation and other symptoms, including pain, fatigue, and trouble swallowing. Myositis can result in myositis-associated interstitial lung disease; and</html:p>
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<ns0:Whereas id="id_F98C0B08-9965-44C8-9EF4-D5E7C1017E5D">
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<html:p>WHEREAS, More research is needed to identify the causes of, and modes of treatments for, the myositis group of diseases, including anti-MDA5 autoantibody positive myositis, anti-synthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis; and</html:p>
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</ns0:Whereas>
<ns0:Whereas id="id_0F0ACF5C-B58D-48B7-BD84-52C11E073302">
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<html:p>WHEREAS, Myositis is difficult to diagnose, so treatment is often delayed, and individuals generally experience difficulty finding a health care provider with expertise in their condition; and</html:p>
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</ns0:Whereas>
<ns0:Whereas id="id_D94CF8F7-E1C7-43FB-ABA0-D99BF29ECFFD">
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<html:p>WHEREAS, All who suffer with myositis experience reduced quality of life, especially as no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis; and</html:p>
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</ns0:Whereas>
<ns0:Whereas id="id_C42987D1-AF79-4321-9BB3-BF2AB7472CA6">
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<html:p>WHEREAS, Women and people of color with all forms of myositis experience particularly pronounced health disparities; and</html:p>
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</ns0:Whereas>
<ns0:Whereas id="id_6883FEAC-1429-4623-87B3-841E579A5B1A">
<ns0:Content>
<html:p>WHEREAS, The Myositis Association is the leading international patient advocacy organization serving the myositis community, focusing on patient services, education, research, and public awareness, so as to achieve a world without myositis; and</html:p>
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<ns0:Whereas id="id_F04B625A-43C0-4D4F-B971-84BD0D1F5246">
<ns0:Content>
<html:p>WHEREAS, The Myositis Association is organizing a nationwide observance of Myositis Awareness Month for the month of May 2025; now, therefore, be it</html:p>
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<html:i>Resolved by the Senate of the State of California, </html:i>
That the Senate observes the month of May 2025 as Myositis Awareness Month in California, and encourages all citizens of California to come together, learn more about all the forms of myositis and its symptoms, and support the families in our community who will benefit from greater awareness of these rare diseases; and be it further
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<html:i>Resolved, </html:i>
That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
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1.0" ?> 20250SR__004398ENR 98 INTRODUCED 2025-05-12 PASSED_SENATE 2025-05-29 ENROLLED 2025-05-30 2025 0 SR 43 ENR Introduced by Senator Becker LEAD_AUTHOR SENATE Becker Relative to Myositis Awareness Month. Myositis Awareness Month WHEREAS, Nearly one in 10 Americans have rare diseases, including residents of California affected by myositis; and WHEREAS, Idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle wasting diseases; and WHEREAS, Myositis often features debilitating muscle inflammation and other symptoms, including pain, fatigue, and trouble swallowing. Myositis can result in myositis-associated interstitial lung disease; and WHEREAS, More research is needed to identify the causes of, and modes of treatments for, the myositis group of diseases, including anti-MDA5 autoantibody positive myositis, anti-synthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis; and WHEREAS, Myositis is difficult to diagnose, so treatment is often delayed, and individuals generally experience difficulty finding a health care provider with expertise in their condition; and WHEREAS, All who suffer with myositis experience reduced quality of life, especially as no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis; and WHEREAS, Women and people of color with all forms of myositis experience particularly pronounced health disparities; and WHEREAS, The Myositis Association is the leading international patient advocacy organization serving the myositis community, focusing on patient services, education, research, and public awareness, so as to achieve a world without myositis; and WHEREAS, The Myositis Association is organizing a nationwide observance of Myositis Awareness Month for the month of May 2025; now, therefore, be it Resolved by the Senate of the State of California, That the Senate observes the month of May 2025 as Myositis Awareness Month in California, and encourages all citizens of California to come together, learn more about all the forms of myositis and its symptoms, and support the families in our community who will benefit from greater awareness of these rare diseases; and be it further Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |