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Measure SCR 80
Authors Niello  
Principle Coauthors: Jones  
Coauthors: Allen   Alvarado-Gil   Dahle   Grayson   Ochoa Bogh   Seyarto   Strickland   Umberg   Alanis   Chen   Irwin   Patterson   Wallis  
Subject Frontotemporal Degeneration Awareness Week.
Relating To
Title Relative to Frontotemporal Degeneration Awareness Week.
Last Action Dt 2025-09-09
State Chaptered
Status Chaptered
Active? Y
Vote Required None
Appropriation None
Fiscal Committee No
Local Program None
Substantive Changes None
Urgency None
Tax Levy None
Leginfo Link Bill
Actions
2025-09-09     Enrolled and filed with the Secretary of State at 11:30 a.m.
2025-09-09     Chaptered by Secretary of State. Res. Chapter 172, Statutes of 2025.
2025-09-03     In Senate. Ordered to engrossing and enrolling.
2025-09-02     Read. Adopted. (Ayes 78. Noes 0. Page 2820.) Ordered to the Senate.
2025-08-28     From committee: Be adopted. Ordered to consent calendar. (Ayes 9. Noes 0.) (August 28).
2025-08-21     Referred to Com. on RLS.
2025-08-19     In Assembly. Held at Desk.
2025-08-18     Read. Adopted. (Ayes 37. Noes 0. Page 2155.) Ordered to the Assembly.
2025-07-09     Read second time. Ordered to third reading.
2025-07-08     Read third time and amended.
2025-07-08     Ordered to second reading.
2025-05-28     From committee: Ordered to third reading.
2025-05-20     From committee with author's amendments. Read second time and amended. Re-referred to Com. on RLS.
2025-05-15     Introduced. Referred to Com. on RLS.
Keywords
Tags
Versions
Chaptered     2025-09-09
Enrolled     2025-09-05
Amended Senate     2025-07-08
Amended Senate     2025-05-20
Introduced     2025-05-15
Last Version Text 
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		<ns0:AuthorText authorType="LEAD_AUTHOR">Introduced by Senator Niello</ns0:AuthorText>
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		<ns0:AuthorText authorType="COAUTHOR_ORIGINATING">(Coauthors: Senators Allen, Alvarado-Gil, Dahle, Grayson, Ochoa Bogh, Seyarto, Strickland, and Umberg)</ns0:AuthorText>
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				<ns0:Name>Niello</ns0:Name>
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				<ns0:Name>Alvarado-Gil</ns0:Name>
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				<ns0:Name>Dahle</ns0:Name>
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				<ns0:House>SENATE</ns0:House>
				<ns0:Name>Ochoa Bogh</ns0:Name>
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				<ns0:Name>Strickland</ns0:Name>
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				<ns0:Name>Umberg</ns0:Name>
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				<ns0:Name>Alanis</ns0:Name>
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				<ns0:Contribution>COAUTHOR</ns0:Contribution>
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				<ns0:Name>Chen</ns0:Name>
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				<ns0:Contribution>COAUTHOR</ns0:Contribution>
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				<ns0:Name>Irwin</ns0:Name>
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				<ns0:Contribution>COAUTHOR</ns0:Contribution>
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				<ns0:Name>Patterson</ns0:Name>
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				<ns0:Contribution>COAUTHOR</ns0:Contribution>
				<ns0:House>ASSEMBLY</ns0:House>
				<ns0:Name>Wallis</ns0:Name>
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		<ns0:Title>Relative to Frontotemporal Degeneration Awareness Week. </ns0:Title>
		<ns0:RelatingClause>Frontotemporal Degeneration Awareness Week</ns0:RelatingClause>
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			<ns0:Subject>Frontotemporal Degeneration Awareness Week.</ns0:Subject>
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			<html:p>This measure would declare the week of September 21 to September 28, 2025, inclusive, as Frontotemporal Degeneration Awareness Week.</html:p>
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			<ns0:FiscalCommittee>NO</ns0:FiscalCommittee>
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	<ns0:Resolution id="resolution">
		<ns0:Whereas id="id_86FF0AD6-73E1-4843-854D-E6C1B46A3927">
			<ns0:Content>
				<html:p>WHEREAS, It is the custom of the Legislature to recognize official weeks that are set aside to increase awareness of serious health conditions that affect the lives of citizens of California; and </html:p>
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		<ns0:Whereas id="id_2E859BA0-894C-4FAA-BDD8-CE8F85F84B70">
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				<html:p>WHEREAS, Attendant to that concern and in full accord with its longstanding traditions, it is the sense of the Legislature to memorialize and to proclaim the week of September 21 to September 28, 2025, inclusive, as Frontotemporal Degeneration Awareness Week in California, in conjunction with the observance of World FTD Awareness Week; and </html:p>
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		<ns0:Whereas id="id_45FBB9F8-5AFD-42EE-B8BB-F1626345EB03">
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				<html:p>WHEREAS, The Association for Frontotemporal Degeneration (AFTD) reports that Frontotemporal Degeneration (FTD) is a terminal and incurable neurodegenerative disease affecting the frontal and temporal lobes, causing impairments to speech, personality, behavior, and motor skills that constitutes a major public health concern; and </html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_196F5822-56F1-4DF5-838C-323905B2A436">
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				<html:p>WHEREAS, It takes an average of 3.6 years from the initial symptoms to get an accurate diagnosis of FTD, with an average life expectancy of 7 to 13 years after the initial symptoms; and </html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_F9E1F647-681F-4C54-8D09-67E3B6F1420F">
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				<html:p>WHEREAS, FTD strikes people as young as 21 years of age and as old as 80 years of age, with the largest percentage of those affected being in their 40s to 60s, rendering people in the prime of life unable to work or function normally; and </html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_0361017A-5B31-41F2-A690-F9AE4E72E424">
			<ns0:Content>
				<html:p>WHEREAS, FTD imposes average annual costs associated with care and living with the disease that are approximately double those of Alzheimer’s disease; and</html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_5B09010E-788E-41CC-A4D0-AC408987F76F">
			<ns0:Content>
				<html:p>WHEREAS, FTD is identified in the National Plan to Address Alzheimer’s Disease as a related dementia and included as a priority in the goals and strategies of the plan to achieve the vision of a nation free of Alzheimer’s disease and related dementias; and </html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_C4A818FF-1238-448D-A186-DA6128CB966F">
			<ns0:Content>
				<html:p>WHEREAS, The California Master Plan for Aging incorporates all 10 recommendations from the Governor’s Task Force on Alzheimer’s (Disease) Prevention and Preparedness to help people and families living with Alzheimer’s disease and related dementia; and</html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_C3B5714A-7196-4F0D-B74D-1E2F9BC48A49">
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				<html:p>WHEREAS, FTD represents an estimated 5 to 15 percent of all dementia cases and is the most common form of dementia for people under 60 years of age; and</html:p>
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		<ns0:Whereas id="id_28370C21-8A8B-4BDC-A6DF-50E3542E5529">
			<ns0:Content>
				<html:p>WHEREAS, Approximately 40 percent of people with FTD have a family history of FTD or a related condition such as Amyotrophic Lateral Sclerosis (ALS), with about one-half of those found to have an inherited form accounted for by mutations in the Progranulin, C9orf72, Tau/MAPT and other rarer genes; and</html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_28731212-E8DE-4B05-88DC-AD1E5F82FAD6">
			<ns0:Content>
				<html:p>WHEREAS, FTD is often misdiagnosed as a psychiatric problem or other neurodegenerative disease because of the wide range of cognitive and behavioral symptoms and their young onset; and</html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_DAF9600D-1C32-420B-BACD-2494F8B0268D">
			<ns0:Content>
				<html:p>WHEREAS, FTD often affects a person’s ability to express emotions and to show affection and empathy for loved ones; and </html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_90E49573-F8A4-44D4-B53F-D3A109A5307A">
			<ns0:Content>
				<html:p>WHEREAS, In the behavioral variant of FTD, a person’s sense of social graces and appropriate behavior can be lost, and their personality may be significantly changed; and </html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_7AC6BA20-860F-4DB2-B24E-1CDB16816050">
			<ns0:Content>
				<html:p>WHEREAS, Furthermore, in the language variants of FTD (primary progressive aphasia), a person may have trouble producing speech and understanding grammar, lose the meaning of words or become hesitant in their speech, and may eventually become mute; and </html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_045512F7-C75F-4D00-A6D4-B26BE4359B0F">
			<ns0:Content>
				<html:p>WHEREAS, In the movement variants of FTD, a person may experience muscle weakness, falling, loss of balance, difficulty making speech, difficulty swallowing, or choking; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_57DDF4EA-C61D-4EEB-A6B1-24E860C84BCC">
			<ns0:Content>
				<html:p>WHEREAS, While there has never been a global epidemiology study of FTD, it is estimated that more than 60,000 people are affected in the United States today; and </html:p>
				<html:p>WHEREAS, The AFTD is the leading national organization exclusively focused on the spectrum of FTD disorders with a mission to improve the quality of life of people affected by FTD and drive research to a cure; and </html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_BE2EB6C3-5C53-416C-8EA0-FA8BD56CDD04">
			<ns0:Content>
				<html:p>WHEREAS, It is imperative that there be greater awareness of this serious disease, and more must be done to increase activity at the local, state, and national levels; now, therefore, be it </html:p>
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		<ns0:Resolved id="id_CAD7ADAE-5C46-4DAF-A92B-C9465B6B51D0">
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					<html:i>Resolved by the Senate of the State of California, the Assembly thereof concurring,</html:i>
					 That the Legislature declares the week of September 21 to September 28, 2025, inclusive, as Frontotemporal Degeneration Awareness Week; and be it further
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					<html:i>Resolved,</html:i>
					 That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
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Last Version Text Digest This measure would declare the week of September 21 to September 28, 2025, inclusive, as Frontotemporal Degeneration Awareness Week.