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Nguyen
Coauthors: Aguiar-Curry Ahrens Alanis Arambula Ávila Farías Bauer-Kahan Bennett Berman Boerner Bonta Calderon Caloza Castillo Chen Connolly Davies DeMaio Fong Gabriel Garcia Gipson Jeff Gonzalez Mark González Hadwick Haney Harabedian Hart Hoover Irwin Jackson Johnson Kalra Krell Lackey Lee Lowenthal Macedo McKinnor Muratsuchi Ortega Pacheco Papan Patel Patterson Pellerin Petrie-Norris Quirk-Silva Ramos Ransom Rivas Michelle Rodriguez Rogers Blanca Rubio Sanchez Schiavo Schultz Sharp-Collins Solache Stefani Ta Tangipa Valencia Wallis Ward Wicks Wilson Zbur |
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| Subject | None | ||||||||||||||||
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| Title | Relative to Angelman Syndrome Awareness Day. | ||||||||||||||||
| Last Action Dt | 2026-02-12 | ||||||||||||||||
| State | Introduced | ||||||||||||||||
| Status | Passed | ||||||||||||||||
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| Analyses | TBD | ||||||||||||||||
| Latest Text | Bill Full Text | ||||||||||||||||
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1.0" ?> WHEREAS, Angelman syndrome is a rare neurogenetic disorder that occurs in 1 in 15,000 live births and affects approximately 500,000 individuals worldwide; and WHEREAS, Angelman syndrome is caused by a loss of function of the UBE3A gene in chromosome 15 derived from the mother, and a gene that is needed to develop and control speech and movement; and WHEREAS, Individuals with Angelman syndrome begin experiencing developmental delays starting from 6 and 12 months of age, inclusive, and these developmental delays are often the first signs of Angelman syndrome; and WHEREAS, In addition to delayed development, Angelman syndrome causes problems with speech and balance, mental disability, and sometimes seizures; and WHEREAS, Angelman syndrome shares symptoms and characteristics with other disorders, including autism, cerebral palsy, and Prader-Willi syndrome; and WHEREAS, Individuals with Angelman syndrome have an overall happy and excitable demeanor, and they smile and laugh often; and WHEREAS, Angelman syndrome is rare. Most individuals with Angelman syndrome do not have a family history of the syndrome, and researchers often do not know what causes the genetic changes that result in the disease; and WHEREAS, Angelman syndrome can lead to several complications, including trouble feeding, hyperactivity, sleep troubles, scoliosis, and obesity; and WHEREAS, The treatment of Angelman syndrome focuses on managing medical, sleep, and developmental issues; and WHEREAS, There is currently no cure for Angelman syndrome, but organizations such as the Angelman Syndrome Foundation note that with further research, there may be a cure in the future; and WHEREAS, Organizations worldwide recognize February 15 as International Angelman Day to raise awareness about Angelman syndrome; now, therefore, be it |