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Measure
ACR 93
Authors
Dixon
Coauthors: Addis Aguiar-Curry Ahrens Alanis Arambula Ávila Farías Bains Bauer-Kahan Bennett Berman Boerner Bonta Caloza Carrillo Castillo Chen Connolly Davies DeMaio Elhawary Ellis Fong Gabriel Gallagher Garcia Gipson Jeff Gonzalez Mark González Hadwick Haney Harabedian Hart Hoover Irwin Jackson Krell Lackey Lowenthal Macedo McKinnor Muratsuchi Ortega Pacheco Papan Patel Patterson Pellerin Petrie-Norris Quirk-Silva Ramos Ransom Rivas Celeste Rodriguez Michelle Rodriguez Rogers Blanca Rubio Sanchez Schiavo Schultz Sharp-Collins Solache Stefani Ta Tangipa Valencia Wallis Ward Wilson Zbur
Subject
Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day.
Relating To
Title
Relative to Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day.
Last Action Dt
2025-07-24
State
Chaptered
Status
Chaptered
Active?
Vote Required
None
Appropriation
None
Fiscal Committee
Local Program
None
Substantive Changes
None
Urgency
None
Tax Levy
None
Leginfo Link
Bill
Actions
2025-07-24		Enrolled and filed with the Secretary of State at 1 p.m.
2025-07-24		Chaptered by Secretary of State - Res. Chapter 153, Statutes of 2025.
2025-07-17		Adopted and to Assembly. (Ayes 35. Noes 0. Page 2138.)
2025-07-17		In Assembly. Ordered to Engrossing and Enrolling.
2025-07-15		Ordered to special consent calendar.
2025-07-02		From committee: Ordered to third reading.
2025-06-23		In Senate. To Com. on RLS.
2025-06-19		Coauthors revised.
2025-06-19		Adopted and to Senate. (Ayes 72. Noes 0. Page 2225.)
2025-06-16		From committee: Be adopted. To Consent Calendar. (Ayes 10. Noes 0.) (June 16).
2025-06-05		Referred to Com. on RLS.
2025-06-03		From printer.
2025-06-02		Introduced. To print.
Keywords
Tags
Versions
Chaptered		2025-07-24
Enrolled		2025-07-21
Introduced		2025-06-02
Last Version Text
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		<ns0:AuthorText authorType="LEAD_AUTHOR">Introduced by Assembly Member Dixon</ns0:AuthorText>
		<ns0:AuthorText authorType="COAUTHOR_ORIGINATING">(Coauthors: Assembly Members Addis, Aguiar-Curry, Ahrens, Alanis, Arambula, Ávila Farías, Bains, Bauer-Kahan, Bennett, Berman, Boerner, Bonta, Caloza, Carrillo, Castillo, Chen, Connolly, Davies, DeMaio, Elhawary, Ellis, Fong, Gabriel, Gallagher, Garcia, Gipson, Jeff Gonzalez, Mark González, Hadwick, Haney, Harabedian, Hart, Hoover, Irwin, Jackson, Krell, Lackey, Lowenthal, Macedo, McKinnor, Muratsuchi, Ortega, Pacheco, Papan, Patel, Patterson, Pellerin, Petrie-Norris, Quirk-Silva, Ramos, Ransom, Rivas, Celeste Rodriguez, Michelle Rodriguez, Rogers, Blanca Rubio, Sanchez, Schiavo, Schultz, Sharp-Collins, Solache, Stefani, Ta, Tangipa, Valencia, Wallis, Ward, Wilson, and Zbur)</ns0:AuthorText>
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				<ns0:Name>Valencia</ns0:Name>
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				<ns0:Name>Wallis</ns0:Name>
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				<ns0:Contribution>COAUTHOR</ns0:Contribution>
				<ns0:House>ASSEMBLY</ns0:House>
				<ns0:Name>Ward</ns0:Name>
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				<ns0:Contribution>COAUTHOR</ns0:Contribution>
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				<ns0:Name>Wilson</ns0:Name>
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				<ns0:Name>Zbur</ns0:Name>
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		</ns0:Authors>
		<ns0:Title> Relative to Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day. </ns0:Title>
		<ns0:RelatingClause>Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day</ns0:RelatingClause>
		<ns0:GeneralSubject>
			<ns0:Subject>Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day.</ns0:Subject>
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		<ns0:DigestText>
			<html:p>This measure would designate October 23, 2025, as Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day.</html:p>
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		<ns0:DigestKey>
			<ns0:FiscalCommittee>NO</ns0:FiscalCommittee>
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	<ns0:Resolution id="resolution">
		<ns0:Whereas id="id_E61C747F-A456-4680-9C51-15001081FABB">
			<ns0:Content>
				<html:p>WHEREAS, A rare disease is generally considered to be a disease that affects fewer than 200,000 people in the United States at any given time; and</html:p>
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		</ns0:Whereas>
		<ns0:Whereas id="id_F5DA16F5-4ED4-4C16-9AAF-058D729D26CF">
			<ns0:Content>
				<html:p>WHEREAS, There are more than 6,800 rare diseases. Altogether, rare diseases affect an estimated 25,000,000 to 30,000,000, inclusive, Americans; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_7D1C721B-67DE-43E9-AFF1-8EE9D3C4457C">
			<ns0:Content>
				<html:p>WHEREAS, Some rare diseases are often severely debilitating, impacting not only the patients but their families and loved ones, and have no effective treatments; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_75D9ECAF-B47D-48BD-B1F1-FEF069B64CC0">
			<ns0:Content>
				<html:p>WHEREAS, Aromatic l-amino acid decarboxylase (AADC) deficiency is a life-limiting, severely debilitating genetic neurologic condition that significantly impacts a patient’s development, motor skills, growth, and cognitive and language skills; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_6DD6DBED-46D2-446F-954E-393E83F88D63">
			<ns0:Content>
				<html:p>WHEREAS, AADC deficiency results from an inherited genetic disease where patients lack the AADC enzyme that is required to create dopamine. Without dopamine, patients will never achieve motor milestones like holding their heads up, sitting, or standing, develop the ability to communicate, or perform the most basic of life’s needs. Patients are diagnosed through genetic and other biochemical tests; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_7910679E-BADA-4FCD-9B08-89671EED4123">
			<ns0:Content>
				<html:p>WHEREAS, Patients suffering from AADC deficiency often have low muscle tone that is unexplained and not improving. There are also other symptoms, such as developmental delays and involuntary eye movements; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_87EA8F22-404E-4DD0-8C0B-C37FB3E78824">
			<ns0:Content>
				<html:p>WHEREAS, AADC deficiency is a rare genetic neurological disease, and there have been approximately 350 cases of AADC Deficiency reported worldwide; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_946C70F2-A859-4006-A16B-11933E15A880">
			<ns0:Content>
				<html:p>WHEREAS, Caregivers of patients with AADC deficiency face many challenges and are often responsible for the overall care of the patient; and</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Whereas id="id_C79371DC-08A6-4FDF-BB4D-BC1E55CC855E">
			<ns0:Content>
				<html:p>WHEREAS, The Legislature can raise awareness of AADC deficiency in the public and medical communities; now, therefore, be it</html:p>
			</ns0:Content>
		</ns0:Whereas>
		<ns0:Resolved id="id_51D8719F-532A-421B-A4FF-3E66EBEE19AC">
			<ns0:Content>
				<html:p>
					<html:i>Resolved by the Assembly of the State of California, the Senate thereof concurring,</html:i>
					 That the Legislature designates October 23, 2025, as Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day and encourages Californians to become better informed about, and aware of, AADC deficiency; and be it further
				</html:p>
			</ns0:Content>
		</ns0:Resolved>
		<ns0:Resolved id="id_C11C62A2-4102-4754-A383-ABA60B0FCD29">
			<ns0:Content>
				<html:p>
					<html:i>Resolved,</html:i>
					 That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
				</html:p>
			</ns0:Content>
		</ns0:Resolved>
	</ns0:Resolution>
</ns0:MeasureDoc>
Last Version Text Digest
This measure would designate October 23, 2025, as Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day.