Session:   
Updated:   2026-02-04

Home - Bills - Bill - Authors - Dates - Locations - Analyses - Organizations

Measure
Authors Boerner  
Subject Genetic disease screening.
Relating To relating to public health.
Title An act to amend Sections 124977 and 125001 of the Health and Safety Code, relating to public health, and making an appropriation therefor.
Last Action Dt 2025-01-14
State Introduced
Status Died
Flags
Vote Req Approp Fiscal Cmte Local Prog Subs Chgs Urgency Tax Levy Active?
Majority Yes Yes No None No No Y
i
Leginfo Link  
Bill Actions
2026-02-02     From committee: Filed with the Chief Clerk pursuant to Joint Rule 56.
2026-01-31     Died pursuant to Art. IV, Sec. 10(c) of the Constitution.
2025-05-23     In committee: Held under submission.
2025-04-23     In committee: Set, first hearing. Referred to suspense file.
2025-04-02     From committee: Do pass and re-refer to Com. on APPR. with recommendation: To Consent Calendar. (Ayes 15. Noes 0.) (April 1). Re-referred to Com. on APPR.
2025-03-20     In committee: Hearing postponed by committee.
2025-02-10     Referred to Com. on HEALTH.
2025-01-15     From printer. May be heard in committee February 14.
2025-01-14     Read first time. To print.
Versions
Introduced     2025-01-14
Analyses TBD
Latest Text Bill Full Text
Latest Text Digest

Existing law requires the State Department of Public Health to establish a program for the development, provision, and evaluation of genetic disease testing.

Existing law establishes the continuously appropriated Genetic Disease Testing Fund (GDTF), consisting of fees paid for newborn screening tests, and states the intent of the Legislature that all costs of the genetic disease testing program be fully supported by fees paid for newborn screening tests, which are deposited in the GDTF. Existing law also authorizes moneys in the GDTF to be used for the expansion of the Genetic Disease Branch Screening Information System to include cystic fibrosis, biotinidase, severe combined immunodeficiency (SCID), adrenoleukodystrophy (ALD), and any other disease that is detectable in blood samples, as specified, and exempts the expansion of contracts for this purpose from certain provisions of the Public Contract Code, the Government Code, and the State Administrative Manual, as specified.

This bill would require the department to expand statewide screening of newborns to include screening for Duchenne muscular dystrophy as soon as possible, but no later than January 1, 2027. By expanding the purposes for which moneys from the GDTF may be expended, this bill would make an appropriation.