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<ns0:Id>20250SCR_003397CHP</ns0:Id>
<ns0:VersionNum>97</ns0:VersionNum>
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<ns0:Action>
<ns0:ActionText>INTRODUCED</ns0:ActionText>
<ns0:ActionDate>2025-03-04</ns0:ActionDate>
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<ns0:ActionText>PASSED_ASSEMBLY</ns0:ActionText>
<ns0:ActionDate>2025-06-27</ns0:ActionDate>
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<ns0:ActionText>PASSED_SENATE</ns0:ActionText>
<ns0:ActionDate>2025-05-27</ns0:ActionDate>
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<ns0:ActionText>ENROLLED</ns0:ActionText>
<ns0:ActionDate>2025-07-01</ns0:ActionDate>
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<ns0:Action>
<ns0:ActionText>CHAPTERED</ns0:ActionText>
<ns0:ActionDate>2025-07-03</ns0:ActionDate>
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<ns0:Action>
<ns0:ActionText>FILED</ns0:ActionText>
<ns0:ActionDate>2025-07-03</ns0:ActionDate>
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<ns0:SessionYear>2025</ns0:SessionYear>
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<ns0:ChapterNum>112</ns0:ChapterNum>
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<ns0:AuthorText authorType="LEAD_AUTHOR">Introduced by Senator Padilla</ns0:AuthorText>
<ns0:AuthorText authorType="COAUTHOR_ORIGINATING">(Coauthors: Senators Alvarado-Gil, Ochoa Bogh, Seyarto, Umberg, Valladares, and Weber Pierson)</ns0:AuthorText>
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<ns0:Legislator>
<ns0:Contribution>LEAD_AUTHOR</ns0:Contribution>
<ns0:House>SENATE</ns0:House>
<ns0:Name>Padilla</ns0:Name>
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<ns0:Legislator>
<ns0:Contribution>COAUTHOR</ns0:Contribution>
<ns0:House>SENATE</ns0:House>
<ns0:Name>Alvarado-Gil</ns0:Name>
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<ns0:Legislator>
<ns0:Contribution>COAUTHOR</ns0:Contribution>
<ns0:House>SENATE</ns0:House>
<ns0:Name>Ochoa Bogh</ns0:Name>
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<ns0:Legislator>
<ns0:Contribution>COAUTHOR</ns0:Contribution>
<ns0:House>SENATE</ns0:House>
<ns0:Name>Seyarto</ns0:Name>
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<ns0:Legislator>
<ns0:Contribution>COAUTHOR</ns0:Contribution>
<ns0:House>SENATE</ns0:House>
<ns0:Name>Umberg</ns0:Name>
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<ns0:Legislator>
<ns0:Contribution>COAUTHOR</ns0:Contribution>
<ns0:House>SENATE</ns0:House>
<ns0:Name>Valladares</ns0:Name>
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<ns0:Legislator>
<ns0:Contribution>COAUTHOR</ns0:Contribution>
<ns0:House>SENATE</ns0:House>
<ns0:Name>Weber Pierson</ns0:Name>
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<ns0:Title> Relative to GM1 Gangliosidosis Awareness Day. </ns0:Title>
<ns0:RelatingClause>GM1 Gangliosidosis Awareness Day</ns0:RelatingClause>
<ns0:GeneralSubject>
<ns0:Subject>GM1 Gangliosidosis Awareness Day.</ns0:Subject>
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<html:p>This measure would declare May 23, 2025, as GM1 Gangliosidosis Awareness Day in California.</html:p>
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<ns0:FiscalCommittee>NO</ns0:FiscalCommittee>
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<ns0:Resolution id="resolution">
<ns0:Whereas id="id_3EE79B6A-EC02-4AE0-97C6-87B29D8F7D3B">
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<html:p>WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and</html:p>
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</ns0:Whereas>
<ns0:Whereas id="id_B11D5DBE-47C4-46EB-BABA-2207F6E0C87B">
<ns0:Content>
<html:p>WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only one in every 100,000 to 200,000 live births; and</html:p>
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</ns0:Whereas>
<ns0:Whereas id="id_E9FEC9B7-B87B-456E-B142-5A5208C990A6">
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<html:p>WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and</html:p>
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<html:p>WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and</html:p>
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</ns0:Whereas>
<ns0:Whereas id="id_8F049736-E2DB-4917-96EE-BB31E1920F9B">
<ns0:Content>
<html:p>WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it</html:p>
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<html:i>Resolved by the Senate of the State of California, the Assembly thereof concurring,</html:i>
That the Legislature declares May 23, 2025, as GM1 Gangliosidosis Awareness Day in California; and be it further
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<html:i>Resolved,</html:i>
That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
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